Zoe Ridgway, a 32-year-old mum to Sofia, 12, from Aberdare, South Wales, was diagnosed with Marfan syndrome at the age of 12. As a teenager she grew unusually long limbs and her height soared to ...

NEW JERSEY TWINS RECEIVE MATCHING HEART SURGERIES AFTER MARFAN SYNDROME DIAGNOSIS ... "As an 11-year-old girl, I thought, if I could just smile, I would have friends and wouldn’t get bullied ...

A record-breaking 12-year-old has been named the tallest girl in the world and towers ... around the world Sophie was diagnosed with Marfan syndrome at eight months and looks down on her 5'10 ...

Marfan syndrome is a rare genetic disorder that affects the body’s connective tissues that support organs, bones, muscles and other tissues. Patients are often tall and thin, with long limbs ...