The Sun25 天
I was bullied for my ‘lanky limbs’ and ‘deformed hands’ – I tried to take my own ...
Some people are only mildly affected by Marfan syndrome, while others develop more serious symptoms. Typical characteristics of Marfan syndrome include: Being tall Abnormally long and slender ...
Nature5 年
Effectiveness of ACE inhibition in patients with Marfan's syndrome on β-blockade
The standard treatment for the connective tissue disorder Marfan's syndrome (MFS) is β-blockade, aimed at reducing aortic wall stress. Angiotensin II type 1 and 2 receptors (AT 1 and AT 2 ...
Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and ...
Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and hollow face - Zoe Ridgway was diagnosed ...
The Independent25 天
Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and ...
“I try to change my face by having fillers because I can see I have Marfan syndrome and I don’t want ... a lot about it and could see I had the symptoms but when I told people I had it ...
unilad12 天
Woman’s body is so weak she’s ‘melting’ after being born with extremely rare condition
A woman with Loeys-Dietz syndrome has opened up about why she feels so 'lucky' while raising awareness of the disorder ...
Wales Online25 天
Mum with rare long limbs and hollow face condition talks being called 'freak', suicide ...
In addition to Marfan syndrome, Zoe, from Aberdare ... a big reader so I researched a lot about it and could see I had the symptoms but when I told people I had it, no-one knew what it was." ...