His little squeak at the end 🥹 Alexander was born with a disease called Dyskeratosis Congenita. The disease is an “umbrella” term like cancer is to lymphoma (if that makes sense..) The more specific name of his disease is called Hoyeraal Hreidarsson Syndrome with the most severe and rare genetic mutation of the syndrome, TINF2. This disease JUST BEGINS with loss of cerebral function/tissue, failure to thrive, bone marrow failure, premature aging due to telomere disorder, and so much more. The t

Behind the scenes | A. Samuel Behind The Scenes

'Guardians' Cast Share Behind-the-Scenes Moments